IBD in Children: A parent’s guide

If your child has recently been diagnosed with Crohn’s Disease or Ulcerative Colitis, you might have questions about the condition, how it might affect your child and the treatments that may be used. This information has been produced to answer some of these questions. It also looks at some of the more general concerns that you may have as a parent, and includes suggestions based on the experiences of other parents of children with Crohn’s Disease or Ulcerative Colitis. It has been written mainly for parents of children under 16, but we hope it may also be of interest to parents of older children.

All our information is research based and produced in consultation with patients, medical advisers and other health or associated professionals. However, they are prepared as general information and are not intended to replace specific advice from your own doctor or any other professional. Crohn’s and Colitis UK does not endorse or recommend any products mentioned. 

Introduction
What is Inflammatory Bowel Disease?
What are the main symptoms?
What causes Crohn's and Colitis?
Can other parts of the body be affected?
Will my child get better?
What tests might my child need?
What kinds of treatment are there?
How does dietary treatment work?
Is a special diet helpful at other times?
What drugs are used for Crohn's and Colitis?
Important point about drug treatment
Should my child have vaccinations?
When is surgery necessary?
Is there a risk of bowel cancer?
How can I tell if my child is developing a relapse?
Talking with health professionals
Where can we go for information?
How do I come to terms with my child's condition?
How can I help my child cope?
Practical tips for living with Crohn's and Colitis
How can I encourage my child to eat?
What can I say to other people about my child's Crohn's or Colitis?
What is the best way to approach schools and teachers?
How can I help my child cope with stress at school?
How can I help my child manage tiredness and fatigue?
Can we go on holiday with a child with IBD?
Help and support from Crohn's & Colitis UK
How we write our information