About Us

Right now, over 300,000 people in the UK are living with a lifelong disease that many people have never heard of. And the real number could be almost double that.

Because of the stigma and misunderstanding surrounding these diseases, thousands of people are suffering in silence. But they're not alone. We're here for them.

Founded as a patients’ association in 1979, we now have over 40,000 members across the UK. 

These aren’t just people who have Crohn's or Colitis – our members also include their families and friends, health professionals and others who support our work. They’ve helped us set up 50 Local Networks across the nation. These arrange educational meetings, generate publicity and organise fundraising.