Helen Terry

Director of Policy, Public Affairs & Research.

Helen brings 30 years of experience from the public and voluntary sectors to her role at Crohn’s & Colitis UK. Previous employers include the NHS, Social Services and the Maternity Alliance.

A passionate advocate for people who are disadvantaged or discriminated against, Helen was at the fore of campaigning for improved maternity rights, the introduction of paternity leave and pay, and the right for working parents or carers to request flexible hours.

As a Social Worker, Helen took on a number of roles, working in a hospital team, a community mental health centre, and as a specialist adviser representing social service clients at Disability Appeal Tribunals and taking ‘test’ cases to the Social Security Commissioners. She is also an experienced social work practice teacher and freelance trainer, having worked with organisations such as the National Association of Citizens Advice Bureaux (NACAB), Child Poverty Action Group (CPAG) and the London Advice Services Alliance (LASA).

Helen has written for journals and contributed chapters to books on maternity rights, welfare benefits and IBD nursing. She was instrumental in the Department of Health’s decision to appoint Crohn’s & Colitis UK as a pilot site to develop an accreditation scheme for health and social care information. 

As Director of Policy, Public Affairs and Research at Crohn’s & Colitis UK since 2014, Helen leads on our campaigns to drive up standards of IBD care and reduce the disadvantage faced by people with IBD. Our research is directed towards improving support for people living with IBD, better treatments and, ultimately to find a cure.

For more information, please contact helen.terry@crohnsandcolitis.org.uk