Community and Campaigns

Get connected with IBD Nurses and find out about Crohn's & Colitis UK Campaigns.


The RCN IBD Network supports IBD nurses across the UK, helping to develop nurses, promote and maintain high standards for care for patients. The network provides a national voice for IBD nurses within the RCN, and with other networks and stakeholders.

Active regional groups meet across the UK. These are great chance to meet other like-minded nurses to network and to share educational opportunities, audit, research, and disseminate best practice.

Sign up through the RCN Gastrointestinal Forum, or join the Facebook group.

Current campaigns

As advocacy is a big part of the role, Crohn’s & Colitis UK want to work with IBD Nurse Specialists across the country to help end stigma and improve care for people living with Crohn's and Colitis. 

More IBD Nurses – Better Care campaign

Meeting the needs of people affected by Crohn's and Colitis in the UK is at the heart of what we do.

Our current campaign seeks to increase the number of services with IBD Nurse Specialists and meet the national standards for care.

Over 1,200 people have pledged their support by writing to the Chief Executives of 248 local hospitals. Many hospitals are now reviewing business cases for more IBD Nurses and many others are addressing their service provision with a view to addressing gaps in care.

Learn more about the campaign here

Accessible toilets campaign

We have been fighting to end the stigma for people with Crohn's and Colitis using accessible public toilets. A major worry for people living with an “invisible disability” such as Crohn’s Disease or Ulcerative Colitis is being refused access to or confronted for using accessible toilets.

Our accessible toilets campaign has already seen several major supermarkets installing our “Not every disability is visible” signs on their accessible facilities, but we’re not stopping here.

Join our campaign to raise even more awareness for invisible disabilities and help end the stigma for good.

Learn more about the campaign here

Past successes

Health Service Journal (HSJ) Supplement

The HSJ is the leading journal for senior NHS managers in England. As part of our ongoing mission to build the case for more IBD Nurses, we commissioned a supplement in their February 2017 issue.

The piece underlines the importance of IBD Nurses to achieve various best-practice objectives, from cost savings to excellence in patient care, and champions innovative service redesign.

It also features a call to build business cases for more IBD Nurses.

Read the article here

Scotland Leading the Way

Our Scotland Leading the Way campaign produced the National Blueprint for Inflammatory Bowel Disease (IBD) in Scotland – the first of its kind in the UK.

The blueprint is designed to ensure that people living with Crohn's or Colitis can access timely and appropriate care, improving their health and enabling them to participate fully in their education, family and social lives.

The National Blueprint aims to reshape Scottish IBD care provision and implement the lessons learned across every NHS Health Board in Scotland.

Learn more about the campaign here