Faster access to specialist treatment and advice

Why is quick access to specialists important?

Crohn’s and Colitis are fluctuating conditions, which means they need to be monitored closely, and specialist advice and treatment should be available quickly when needed.  Understanding when you are having a flare-up of your condition – when symptoms get worse - and what you can do to manage this is very important.  We have co-designed a flare card as part of a project in Scotland and flare pathways to streamline access from GPs to specialists.

IBD advice lines

Most specialist hospital services run an IBD advice line for queries and concerns, which is usually supported by an IBD nurse specialist.  We run IBD advice line training to help IBD nurse specialists to run these effectively. 

Find the details of your local IBD advice line through our map

Access to treatments

Medicines are a vital part of managing and treating the symptoms of Crohn’s and Colitis. Being able to access the widest and most innovative range of evidence-based drug treatments and new technologies is therefore fundamental.

We seek to remove barriers that prevent people with Crohn’s and Colitis from accessing the most effective treatments needed to keep well with Crohn’s or Colitis.  

Find out more about our work to increase access to drugs and treatments.

We work with the Association of Coloproctology of Great Britain and Ireland (ACPGBI) as part of IBD UK to ensure that surgery for Crohn’s and Colitis is prioritised appropriately alongside other conditions based on clinical need. 

Read the ACPGBI guidance on management of patients with IBD requiring surgical intervention during the COVID-19 pandemic.

We are also members of the advisory group for the National Confidential Enquiry into Patient Outcome and Death (NCEPOD) study into surgery for Crohn’s Disease.