There are currently large variations in care across the UK and because of this, IBD UK, a partnership of 17 patient and professional organisations, led by Crohn’s & Colitis UK have come together with people living with Crohn’s and Colitis to develop the IBD Standards.
The IBD Standards set out what high-quality care looks like at every point of the patient journey, from pre-diagnosis, to surgery and ongoing care, as well as how the IBD Service should be organised to deliver this.
The first IBD Standards were created in 2009, following on from the first audit of IBD Services in 2006 by the Royal College of Physicians. They were then updated in 2013 and again most recently in 2019.
For the first time, IBD services have been assessed against the Standards, through both an IBD Benchmarking Tool, comprising of an IBD Patient Survey (completed by patients) and Service Self-Assessment (completed by hospitals/IBD clinics).
People living with Crohn’s or Colitis have been able to say anonymously what their IBD service is doing well and things they could do better. The data collected in the survey will also help services to make a case for greater investment.
For more information, take a look at the IBD UK website, where you’ll be able to see the full list of IBD Standards, read blogs and view reports produced from the IBD Patient Survey and Service Self-Assessment.