There are currently large variations in care across the UK and because of this, IBD UK, a partnership of 17 patient and professional organisations, led by Crohn’s & Colitis UK have come together with people living with Crohn’s and Colitis to develop the IBD Standards.
The IBD Standards set out what high-quality care looks like at every point of the patient journey, from pre-diagnosis, to surgery and ongoing care, as well as how the IBD Service should be organised to deliver this.
The first IBD Standards were created in 2009, following on from the first audit of IBD Services in 2006 by the Royal College of Physicians. They were then updated in 2013 and again most recently in 2019.
For the first time, IBD services have been able to see how they are doing against the IBD Standards through the IBD Benchmarking Tool, which includes an IBD Patient Survey (completed by patients between July and Nov 2019) and a Service Self-Assessment (completed by hospitals / IBD services between Oct 2019 and Jan 2020).
People living with Crohn’s or Colitis have been able to say anonymously what their IBD service is doing well and things they could do better. The data collected in the survey will also help services to make a case for greater investment.