Crohn's & Colitis UK believes that no initiative, development or service will be as good as it could be, without the input of people affected by the conditions.
People living with Crohn’s or Colitis have a personal experience and understanding of health and other public services. This wealth of experience plays a vital role in shaping the work of the Charity and improving services for others.
Crohn's & Colitis UK work to ensure that the voice of those living with Crohn’s or Colitis is valued and heard, through supporting patients and working with services to increase their Patient Engagement. Our position statement on involving people with Crohn’s and Colitis in Improving Health Services explains that patient engagement is at the heart of designing, developing and monitoring good services. We want to see the same high-quality care and support for everyone with Crohn’s or Colitis.
What is Patient Engagement?
There are many different ways of involving patients in designing health services. The diagram below highlights some of them. At one end of the ladder the patient is given information and services that they have little or no control over. At the other end of the ladder patients work together with healthcare professionals, managers and commissioners to ‘co-design’ and ‘co-produce’ health services. The ladder can help you work out where you are and where you want you to be with different activities.
► Click here to view the ladder diagram as a larger PDF
For further information on Patient Engagement, please visit our Patient Engagement Toolkit. Where you can find out more about the different ways to involve and get involved, as well as some top tips.
Being a part of the Highland project has been great. I've learnt so much and knowing that I am helping change the shape of healthcare for IBD patients in the Highlands and in Scotland as a whole is hugely satisfying.