Patient Engagement Toolkit

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We’re working to help everyone affected by Crohn’s and Colitis.

We want people living with Crohn’s or Colitis and healthcare professionals - to shape health services, together. Improving health services requires everyone’s voice to be heard.

That is why we’ve created this Patient Engagement Toolkit, to make it easy to get involved and to involve, and importantly to work together.

To get started by finding out more about what patient engagement is, please click here.

We are striving to make sure that everyone living with Crohn’s and Colitis receives the best possible care and treatment at each point of their patient journey from their first GP appointment to self-managing their condition after treatment or surgery.

Rukshana Kapasi, Director of Health Service Development,
Crohn's & Colitis UK

Who is this toolkit for?

Part one of the toolkit is for people living with Crohn’s or Colitis. It tells you how you can get involved with improving, designing and developing IBD services. And other ways you can get involved with Crohn’s & Colitis UK.

Part two is for healthcare professionals working in IBD services or Primary Care. The toolkit guides you through a range of methods for working with people and is full of practical resources to support you to engage with the people using your service.