Patient Engagement Toolkit

We’re working to help everyone affected by Crohn’s and Colitis.

We want people living with Crohn’s or Colitis, their family, carers and healthcare professionals - to shape health services, together. We understand that improving health services requires everyone’s voice to be heard.

That is why we’ve designed this patient engagement toolkit, to make it easy to get involved and importantly, to work together. To find out more about what patient engagement is, please click here.

We are striving to make sure that everyone living with Crohn’s and Colitis receives the best possible care and treatment at each point of their patient journey from their first GP appointment to self-managing their condition after treatment or surgery.

Rukshana Kapasi, Director of Health Service Development,
Crohn's & Colitis UK

Who is this toolkit for?

Part one of the toolkit is for people living with Crohn’s or Colitis and anyone affected by the conditions, such as their family and carers. It tells you how you can get involved with improving, designing and developing good IBD health services. And how you can get involved with Crohn’s & Colitis UK.

Part two is for healthcare professionals working in IBD services or Primary Care. It tells you how to better engage, educate and inform people using your service. The toolkit guides you through a range of methods for working with people and is full of practical resources to support you.