Patient Voices Network

 

Patient Voices are people living with Crohn’s or Colitis who are vital in sharing their experience to help shape IBD services and improve IBD care. The network is formed of people living with Crohn’s or Colitis (patients) across the UK. 

 

It is key that people with Crohn’s or Colitis are involved from start to finish, to ensure that projects and IBD care reflects and meets the needs of the people requiring it. We embrace people with Crohn’s or Colitis from all age groups and walks of life in becoming a Patient Voice, hearing about a wide range of experiences is what really makes this work.

People living with Crohn’s or Colitis have a personal experience and understanding of healthcare. This experience should play a vital role in improving healthcare services and we want your voice to be heard.

As a Patient Voice you will be invited to get involved in a wide variety of ways, some of which are described in our Patient Engagement Toolkit. Patient Voices will receive ad hoc opportunities to get involved, it is your choice to get involved in each opportunity. Please take a look at our patient engagement opportunities to see the ones we have available now – there are always new and exciting opportunities coming up.

To become a Patient Voice please complete the form below. 

Being a Patient Voice involves:

  • Sharing your experiences
  • Working in partnership to contribute feedback and ideas

Specific tasks/opportunities could involve:

  • Being a part of a meeting or focus group
  • Dialling into a phone call or webinar
  • Completing an online form or sending written feedback
  • Reviewing a draft document