Involving IBD patients

Involving IBD patients

Crohn's and Colitis UK believes that no Inflammatory Bowel Disease (IBD) related initiative, development or service will be as good as it could be without the input of people affected by these conditions at each stage in the cycle of planning and development, implementation and delivery, monitoring and review.

Those living with IBD have a personal experience and understanding of the impact this has on their and their families' lives and through receiving health and other public services, they can become 'Experts by Experience'. This wealth of experience plays a vital role in informing and shaping the work of the Charity and improving the way services are delivered for others.

Crohn's and Colitis UK work to ensure that the voice of those living with IBD is valued and heard. We support individuals to become involved with the Charity and with initiatives that can make a real difference to the lives of others with IBD. In addition to this, we support and encourage individuals to get involved in service improvement more broadly by participating in opportunities that are not IBD specific but enable representation from the IBD patient community.


Susan Maniquiz

Being a part of the Highland project has been great.  I've learnt so much and knowing that I am helping change the shape of healthcare for IBD patients in the Highlands and in Scotland as a whole is hugely satisfying.

Susan Maniquiz
Scottish Service Development Group Patient Member