Personalised care and support for self-management

Personalised Care:

  • considers how people feel
  • respects individual needs and values
  • demonstrates compassion
  • allows continuity of care
  • enables shared decision making
  • improves outcomes as a result of the care and services people receive.

What is personalised care?

Personalised care for people living with Crohn’s and Colitis is:

Personal: It focuses on what matters to you, rather than what’s the matter with you.
Holistic: It recognises that you are more than just a diagnosis and will address your physical, emotional well-being and social care needs together as one. 
Involves shared decision making: It involves you in decisions about your care. For example, in decisions about medications or surgical interventions.
Supports self-management: It empowers you to take an active role in your care by giving you the information, skills and confidence to self-manage and live as well as possible.
Equal: It treats you as an equal or partner in decisions about your care, not doing things to you but with you.
Co-ordinated: It delivers good joined-up care, where information and decisions are shared in a timely manner and include everyone involved in your care.

The IBD Standards state that “everyone living with IBD should have safe, consistent, high quality personalised care.”

What are we doing?

Crohn’s & Colitis UK, in partnership with doctors, nurses and patients, is working to ensure that person-centred or personalised care is embedded in IBD services across the UK enabling you to have choice and control over your care, and the information and support you need to empower you to live as well as possible with your condition.

We are supporting healthcare professionals by developing a personalised care toolkit.

In Scotland, working in partnership with the Scottish Government Modernising Patient Pathways Programme, we have developed tools and resources to support self-management: a flare card and personalised care plan.

Crohn’s & Colitis UK are working with local partners in Sheffield in a 3-year project to re-design IBD services, shaped by people with Crohn’s and Colitis. Whilst the project is being delivered in Sheffield, the learning from this project will lead to better outcomes for people who live with Crohn’s and Colitis across the UK. Find out more about the AWARE-IBD project here.