Personal Independence Payments

The Personal Independence Payment (PIP) replaced Disability Living Allowance (DLA) on June 2013. It's purpose is to support disabled people who face the greatest challenges to remaining independent and leading full and active lives.

This currently only applies to Great Britain and does not include Northern Ireland. 

This involves an “objective” assessment, focusing on an individual’s ability to carry out a range of key activities necessary to everyday life. Information will be gathered from the individual, as well as healthcare and other professionals who work with and support them.

Crohn’s and Colitis UK are disappointed that the PIP descriptors of abilities include a much narrower range of activities than DLA, and focuses only on those activities required for the bare essentials of existing. 

Crohn's and Colitis UK are concerned that the new system focuses on a much narrower range of activities is less sensitive to the complex needs of people with Inflammatory Bowel Disease (IBD).

All of the questions were based on how I felt most of the time. It is hard to predict how much Crohn’s affects me daily - some days I'm fine, some days I can't get out of bed

 Survey respondent with Crohn’s Disease

What we campaign on...

Crohn's and Colitis UK work with the Disability Benefits Consortium to lobby the Government for the necessary changes to the Personal Independence Payment.  The PIP assessment currently fails to capture the additional costs and barriers encountered by people with IBD.

The PIP assessment fails to adequately recognise or measure the additional disability costs and barriers to participation encountered by people with little understood conditions such as IBD.

The “continence” descriptor is too limited, as it fails to take into account the impact of the frequency and urgency experienced twenty four hours a day by people living with conditions such as IBD, as well as difficulties in reaching a toilet, cleaning up after using the toilet or an episode of incontinence.

People with IBD may experience additional costs associated with buying food and drink, which are currently ignored by the descriptor. These may include the need to buy expensive, nutrient rich foods address deficiencies, or modify their diet to avoid other foods or additives. 

Consideration is not currently given to the additional cost of utilities for people living with disabilities or long-term medical conditions. Laundry or high utility costs may be incurred by people with IBD who have to wash or replace their clothes more frequently due to soiling, or extreme fluctuations in weight. We also know that people with IBD worry about or increased heating costs for people whose condition means that they spend more time in the house. 

Please contact our Information Service is you have any questions about Personal Independence Payment.

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