Crohn’s and Colitis care in the UK: an update

03 June 2021

Last month, as part of our work with IBD UK, we launched a new report looking into the state of healthcare for the estimated half a million adults and children living with Crohn’s and Colitis across the UK.  To highlight the need for better IBD care, we sent this to chief executives of all NHS health trusts and boards, chief medical officers, health ministers and politicians.

Thousands of you have already campaigned alongside us to change things for everyone living with the conditions. Whether you’ve emailed your politician, shared our social media posts or told a friend about the findings, with your help, we are making a difference.

What’s happened?

  • Nearly 3,000 people attended or watched the recording of our report launch
  • ​More than 8,000 emails have been sent to over 1,000 politicians across the UK
  • Content relating to the report has been viewed over 2.5 million times on social media

About the report launch

Nearly 500 people attended our virtual report launch, with another 2,400 of you watching the recording afterwards. We heard from speakers from England, Scotland, Wales and Northern Ireland, as well as Anisha who lives with Colitis. If you missed it, there’s still time to catch up here: Crohn's and Colitis Care in the UK: The Hidden Cost and a Vision for Change Webinar - YouTube

You can also read about the report here: Crohn’s and Colitis Care in the UK: The Hidden Cost and a Vision for Change

Taking action

Over 2,000 of you have sent more than 8,000 emails to politicians across the UK. You’ve been asking your politician to write to their local health trusts or boards, to ask what action they are taking to improve care, and to support our call for IBD to be recognised as an NHS priority across the four UK nations. Together, we are urging governments to commit to a long-term strategy to improve IBD care. You can email your politician here ccuk.link/bettercare.

You can read reports for your local service here: Reports | IBD UK

Sharing stories

People have taken to Twitter, Facebook and Instagram to share their personal experiences of care – increasing awareness and understanding of the issues faced and the need for change.

We’ve been raising this issue in the media, helped by people with Crohn’s and Colitis who are sharing their stories. Care can only improve if we hear from people first-hand. See coverage on ITV Wales, in the Herald Scotland, and the Health Service Journal.  We’d love to hear from you if would be happy to share your story of care. 

What’s next?

This is only the start of the journey to improve care for everyone living with Crohn’s and Colitis. We’ll:

  • Keep pushing for IBD to be a health priority with politicians across the UK.
  • Work with healthcare professionals and services to make changes that deliver better IBD care.
  • Spread the word that better IBD care is urgently needed – with your support.

We’d really appreciate your views on the report launch through a short survey. What do you think has worked well and what could we do better?  Please let us know by 17th June. Thank you for your support!

Take the survey here