Crohn’s & Colitis UK have joined forces with the British Society of Gastroenterology (BSG), and the Royal College of Physicians (RCP) to create IBD Registry.
The Registry’s purpose is to deliver data that will help IBD teams to provide better care to their patients.
The BSG remains committed to supporting high quality care and outcomes for people with IBD, and the IBD Registry is vital for supporting service improvement and answering key research questions. This new partnership offers a solid multi-professional and patient foundation for the project to thrive as an organisation in its own right and continue to meet patient needs.
Martin Lombard
BSG President
This new legal structure will be the groundwork for expanding and improving the IBD Registry, and will give more opportunities for collaboration. The new company is already looking to appoint the first CEO of IBD Registry Ltd.
The Board of the Registry has ambitious plans for developing a long-term strategy that places the Registry at the heart of IBD research and health service development.
We are proud that clinical teams across the UK have invested precious time in supporting the UK IBD Registry. We know that this initiative has the potential to change practice and improve the care we give to our patients. This new phase will open up opportunities for patient participation and linkage with projects in other fields. Continued progress is dependent on continued participation from clinical teams. Please carry on the good work with data entry: the next 12 months will see evidence that time spent on the Registry is rewarded by data reflecting quality of care delivered.
Dr. Stuart Bloom
Chair of IBD Registry
