Information for young people and families

We're here to support young people and their families - whether you're coming to terms with a new diagnosis, or you've been affected by Crohn's or Colitis for some time. Our information can help you and your family find the answers you need to live well with Crohn's or Colitis.

For children and young people | For students | For parents, carers and families | For schools, colleges and universities


Information for children and young people

Our new story Meet our Crohn's and Colitis cats is for children affected by Crohn's or Colitis, whether they have the condition themselves or know someone who does. Click on our Crohn's cats or Colitis cats to watch their full stories. 

 

Transition to adult care is an important milestone for teenagers. It can help to find out more about what’s involved and how you can get ready for the change. We’ve written this booklet with the support of young people who’ve been where you are now (and their parents!). They shared their stories so we could give you tips to make transition easier.

The young people you’ll meet in this booklet all have Crohn’s or Colitis – and they want to share their stories with you.

Five young people with Crohn's and Colitis talk about their own experiences of school, moving to university, relationships, transition and telling others about your condition.

Crohn's & Colitis UK funded researchers worked with young people to create an information sheet and animation for teenagers and young people with tips for telling your friends you have Crohn's or Colitis.


 

Other organisations

CICRA produce information and support for children and young people with Crohn's and Colitis and their families.


Information for students 

Going to university or college can be an exciting but daunting time for anyone. And if you're living with Crohn's or Colitis, you're likely to have more concerns and questions. Hear how you can make the most of your time as a student, while also looking after your health and accessing extra support in our blogs written by students with Crohn's and Colitis:

And if you're struggling to find the right words to tell your new friends or tutors about your condition, try our Talking Toolkit for tailored tips on starting your conversations.


Other organisations

Provide factsheets and guides on further and higher education, including what counts as a disability (some students with Crohn's or Colitis may be considered disabled under the Equality Act 2010) and adjustments and additional funding for disabled students. You can also get information from their Disabled Students Helpline (11am-1pm on Tuesdays and Thursdays) - call 0330 995 0414 or email students@disabilityrightsuk.org


Information for parents, carers and families

This guide is for parents and covers a wide range of topics such as tests and treatments used for Crohn’s and Colitis in children, coping with school, going on holiday, and where to find financial and other types of help and support.

This information sheet discusses the challenges faced by people with Crohn’s and Colitis, and the valuable things family and friends can do to help them.

If your child has Crohn's or Colitis, you may have extra expenses, such as higher heating bills, special diets, taxi fares, laundry, etc. Disability Living Allowance (DLA) can help to meet these costs. This guide will take you step-by-step through the process of making a claim for DLA, right from getting a copy of the form through to getting a letter telling you the result of your application.


Other organisations: information on schools for parents/carers


Information for schools, colleges and universities

Our simple guide and animation explaining all the basics you need to know about Crohn's and Colitis. It may be helpful to share these resources with school staff, university tutors or your Student Disabilty Service.

A leaflet created by Crohn's & Colitis UK funded researchers and young people to help educators and other staff best support their students with Crohn's or Colitis.


Other organisations

CICRA produce a guide for primary schools, a guide for secondary schools and a quick guide for teachers with information on how the conditions may affect young people at school and how schools can fulfil their responsibilites to support children with Crohn's and Colitis.

Provide factsheets and guides on further and higher education, including what counts as a disability (some students with Crohn's or Colitis may be considered disabled under the Equality Act 2010) and adjustments and additonal funding for disabled students.