Support for recently diagnosed

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If you’ve recently been diagnosed with Crohn’s Disease or Ulcerative Colitis you may be relieved that you can finally put a name to your symptoms.

But you might also feel anxious about what happens next and what living with Crohn's or Colitis will mean for you.

We understand what you’re going through and we’re here to help. We can give you the right information and support to help you manage your condition. Our publications and support services are all available on our website, for when you need them.

Where can I find information on my condition?

Start with our pages on Crohn’s Disease and Ulcerative Colitis for an overview of the conditions.

We also have information on symptoms, treatments and a guide to the medical terms you’re may hear over the coming months and years.

You can find more detail in our extensive range of free booklets and information sheets, produced with health experts and people affected by Crohn’s and Colitis. These cover everything from your employment rights through to managing your diet, getting insurance and dealing with specific symptoms and complications.

You may also be interested in attending one of our Local Network events that are held across the UK. Find your nearest Local Network.

What treatment am I going to be given?

Crohn’s and Colitis are managed with drugs but, in some cases, surgery will be needed. There is no specific diet recommended to treat Crohn’s or Colitis, but some people find that changing their diet can help manage some of their symptoms. Find out more about:

Am I going to be able to live a normal life?

We believe no-one’s life should be limited because of Crohn's or Colitis. With advances in treatment and healthcare, it’s perfectly possible to live a full and successful life with the conditions – as our many ambassadors prove.

Take a look at our page on everyday life to see how others with Crohn's and Colitis manage and minimise their symptoms.

We’ve also got a wide range of helpful publications that offer information and advice on dealing with the everyday challenges which may come with Crohn’s Disease and Ulcerative Colitis.

Find out more about living with Crohn's or Colitis.

Who can I talk to?

It's helpful to build a good relationship with your GP and your hospital IBD team. IBD Nurse Specialists can be especially supportive.

Being open about your symptoms and how they affect you will make it easier for your doctors and nurses to make sure you get the right treatment.

Some people with Crohn’s or Colitis can feel embarrassed and upset about having the condition. If you're feeling this way, you might find that talking about it helps. You may wish to speak to a professional counsellor. Or, you might want to call our confidential listening service, Crohn’s and Colitis Support, which is run by volunteers who have a personal experience of Crohn’s or Colitis and are trained in giving emotional support.  

Find out more about counselling for Crohn's and Colitis.

I’m a young person – are there special services for me?

Around 1 in 4 new Crohn's or Colitis diagnoses each year are young people under 16. Having a condition like Crohn’s or Colitis when you are young can be especially difficult.

You may feel isolated and distant from your peers, but our information and support can help. Check out Support for young people and families. This includes information on our events aimed at young people and their familes where you can meet other people like you, and links to our publications for young people.

You could also get our family membership to take advantage of all that membership offers. If you’re aged 16 or over, or you’re a student, you can become a member in your own right, for free.

Many young people get involved with fundraising, campaigning and events, too.

How do I keep up to date or get involved?

Sign up for our email newsletter or take a look at our get involved pages to see how you can support campaigning, fundraising and events organised by Local Networks.