Little things that can help a lot

Hero image: collage of the Little things campaign icons

There are more than 500,000 people in the UK with Crohn's and Colitis and every one of them will have a unique experience of what it’s like to live with the conditions. Different things work for different people and there are no ‘quick fixes’. But there are small things you can try, and if they work, they can make a big difference.

Here are some suggestions and a real life story from a couple building a life together after one of them was diagnosed with Crohn's!

Hero image: collage of the Little things campaign icons

Helping someone you know deal with pain

Hot water bottle icon in a pink circleAsk what helps your friend or family member manage their pain. This may be yoga, avoiding certain foods, or taking the right pain medicine. Some people find hot water bottles helpful, whereas some studies have shown that slow deep breathing and mindfulness exercises like meditation can help with pain. You can find lots of apps, online tools or in-person courses to help with this.

Seeing someone you care about in pain can be distressing, especially when it feels like there’s nothing you can do. Just validating their pain and helping them find ways to cope with it can go a long way. People who feel more in control and have better social support are able to cope better with their pain.


Supporting someone who is feeling exhausted

Many people with Crohn’s or Colitis experience fatigue. Fatigue is ongoing tiredness, lack of energy or exhaustion that doesn’t improve even after rest or sleep. Offering a lift so they don’t have to drive or deal with public transport can also be an enormous help. Or make plans that include being mindful of how they’re feeling. Why not plan more relaxing ways to spend time together when usual activities may be too much of a strain? Or catch-up online if they don’t feel up to meeting in-person.

You might find our information on fatigue and ways to cope with it helpful.


Helping someone who is worried about needing to be near a toilet

Car icon in a blue circleBe mindful of toilet access and pit stops when planning trips or events. People with Crohn’s or Colitis sometimes need to use toilets urgently. Be patient with them, if they spend a long time in the toilet, or rush off mid conversation to find the nearest loo.

Encourage them to become a member of Crohn’s & Colitis UK, or gift membership to them. By doing this they will receive a 'Can’t Wait Card', which explains that they need to use the toilet urgently. They’ll also receive a free Radar Key to unlock disabled toilets.


Supporting someone who has had surgery

Offer to cook and clean so they can focus on their recovery. Some people with Crohn’s or Colitis need surgery. Afterwards, they may feel weak and tired. They may be unable to do any lifting or driving for a while. Offering to do things like cooking and cleaning could be a great help so they can focus on their recovery.

We have more information about surgery for Crohn’s Disease and surgery for Ulcerative Colitis. It covers what to expect before and after surgery. Surgery scars or weight changes can have a negative effect on body image, so they may appreciate reassurance that you don’t see them differently.


Helping someone who is feeling overwhelmed

Cup icon in an orange circleListen to what they’re going through and validate their feelings. Sometimes people might prefer just to carry on as normal and not talk about their illness. But at other times they may appreciate someone to open up to.

It’s important to show that you believe them when they talk about their symptoms, and that they are not a burden to you. Instead of feeling sorry for them, it’s good to take time to really understand what they’re going through. You don’t need to have all the answers, sometimes listening is enough.


Try to avoid unhelpful suggestions about food or diet. Instead, why not ask what triggers their symptoms as everyone is different.

Don’t judge them for how or what they eat. It’s understandable to think that gut issues may have been caused by poor diet. But there’s no evidence that any particular food can cause or cure Crohn’s or Colitis.

The relationship with food is different for everyone living with Crohn’s or Colitis. Foods that may help one person may do nothing or even make symptoms worse in another.


Everyone wants to feel understood. The more you know about Crohn’s and Colitis, the more support you’ll be able to give.

Flowers icon in a green circleThere’s a lot of misleading information online, so it’s best to focus your search on reliable sources such as Crohn’s & Colitis UK or the NHS website. Our information all about Crohn’s and Colitis is a good starting point. We also have information on a wide range of topics, from food and medicines to coping with symptoms and everyday life.

Before you start finding out about Crohn’s and Colitis, it’s important to check how much your friend, relative or colleague wants you to know about their condition. Discuss beforehand how much they want you to know, or read about the condition together to help avoid misunderstandings.


The Little Things: James and Lauren’s Story

James on Lauren

Lauren is my best friend. She is kind, funny, silly and a very supportive partner. Lauren was already diagnosed before I met her. She told me early on in the relationship about her Crohn’s but I didn’t really understand what it was and it didn’t seem that serious. It was only when she was admitted to hospital because of a flare up that I had some idea that it could be bad. The thing about Crohn’s is that it’s something that comes and goes and changes.

 When Lauren was really poorly in 2021 and ended up with a stoma, I found it really hard. I was also aware of what she must have been feeling at the time as the one who was going through it. There was no time to feel sorry for myself because I needed to be the strong figure for her while she tried to navigate through the healing process. It was exhausting for a time and I felt really low in my mood trying to manage it all, but I didn’t want Lauren to see any of that. Thankfully, I had a lot of support at the time from both Lauren’s family and my own. They helped wherever they could to take some of pressure off me.

Talking openly with each other has never been a problem in our relationship so I find it easy to chat to Lauren about her Crohn’s. Now that she’s in a better place physically, I feel like I have this switch in my head that’s ready to turn on at any time, to go into action and care for Lauren however she needs when she’s poorly. It’s like, we “know the drill”.

I try to make her as comfortable as I can and distract her from the pain. I always offer to run her a hot bath and I make sure she is hydrated and has all of her medications available. If I leave her to have her own space, I make sure that my phone is by my side and I’m ready for any call for help. When she’s in hospital I take in as many things as possible to keep her comfy and entertained.

Sometimes I feel helpless knowing there’s nothing I can do to take the symptoms or pain away, but my job as her partner is to stand up and be the supporting figure that she needs in her life. That works both ways, she’s done the same for me.

Lauren on James

During our five years together, James has learned what helps me the most and now I don’t have to ask or anything, he just does it! If I say I’m poorly, he takes on all of my share of the chores, he cooks and he looks after the dog. He will run me a bath, get me all of my medication, and make sure he’s a phone call away. He reminds me that I can get through it, and to rest and take time off work when I need to. James packs my hospital bag when I need it and he does all the 2am hospital trips and then shows up to work the next day to provide for us. He really is a trooper.

Without James, I think I would be lost! He honestly gets me through the darkest times, even making me laugh when it’s tough, which is really important! I never saw myself as a strong person before meeting him, but he reminds me all the time that I am. He is my biggest cheerleader.


We would love to hear from you!

If you live with Crohn's or Colitis or support someone who does, we'd love to hear your experiences!


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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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