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Crohn’s & Colitis UK Nurse Specialists

There are currently 37 Crohn’s & Colitis UK Nurse Specialists across the UK that are part of our Nursing Programme. The Crohn’s & Colitis UK Nurse Specialists attend regular Community Days with us which gives them the opportunity to learn more about the charity and our members, so they can improve care in their hospitals and provide better care for patients.

Use the links below to read more about each Crohn’s & Colitis UK Nurse Specialist across the UK.

What is an IBD Advice Line?

If you become unwell between appointments, many IBD services across the UK provide an IBD Advice Line that you can call or message for help. They’re usually a telephone answering service or email address where a patient can leave a message requesting help and someone will respond to you as soon as possible.

IBD Advice Lines should not be used in an emergency. Find out what to do in an emergency.

The advice lines are usually run by IBD Nurse Specialists who can provide expert support and advice about Inflammatory Bowel Disease, but other members of the local IBD team (e.g. doctors or trained administrative staff) may answer them, too.

IBD Nurse Specialists have advanced knowledge of IBD and they can assess and advise patients over the phone. They may also help organise appointments if they think they’re needed.

What information should I provide an IBD Advice Line?

When leaving a message for the advice line you should providing the following information, as without this the IBD team will not be able to call you back:
• Name and date of birth.
• NHS number (if known).
• Your telephone number and the best time to receive a return call.
• A brief outline of why you are calling the IBD Advice Line.

What are IBD Advice Lines used for?

They’re for IBD patients who:

• Are having a flare-up or worried about adverse symptoms
• Are in between appointments
• Need advice direct from an IBD Nurse Specialist

They shouldn’t be used:

• In an emergency / as an emergency contact
• To arrange or change routine appointments
• For more general information about Crohn's or Colitis

For more general information about Crohn’s Disease, Ulcerative Colitis and other forms of Inflammatory Bowel Disease (IBD), you can contact the Crohn’s & Colitis UK Helpline.