Your privacy and data protection

Your data is in safe hands with Crohn’s & Colitis UK. We are committed to looking after your personal information (this means any information that could identify you) and safeguarding your privacy.

We will:

  • only keep information about you that is vital to providing you with the right support and the best service
  • use information about you to ensure you get the best experience, communications and support we can provide
  • be open and transparent about why we collect your information and what we will do with it
  • follow legal requirements to look after your information and hold it securely

We will not sell your data to anyone. We will only share your data outside of Crohn’s & Colitis UK with trusted suppliers that meet our privacy standards, and to help provide you and our community with the best service.

This may include some background research with trusted third party organisations to help with our fundraising. We look at information that’s already publicly available, alongside details you’ve shared with us, to help us understand the kinds of causes people might care about.

Social Media posts: If you tag us in a social media post, we might share it to help spread the word about our work. We’ll always take care not to include any identifying information beyond the creator’s tag, and we won’t repost anything that features young people under 18 without parent’s permission.

If you’d rather we didn’t share your post, that's fine - you can turn off reposting whenever you like by updating the settings in your social media platforms.

We provide more detail about how we look after your data in our Privacy Policy, our cookies statement and our confidentiality statement.

If you want to change any of the information we hold about you, or the ways we contact you, please contact us at supporters@crohnsandcolitis.org.uk and we will make those changes.

Our postal address is:
Crohn's & Colitis UK
1 Bishops Square (Helios Court)
Hatfield Business Park
AL10 9NE

Or you can call us on 01727 830 038 or send us a message


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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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