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Campaign History

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Our award-winning campaign, Not Every Disability is Visible has been challenging public perceptions since 2016. Historically, at the heart of the campaign we’ve been calling on venues to install our Not Every Disability is Visible accessible toilet signs. This is because the most common symptom of Crohn’s and Colitis is frequent, urgent diarrhoea.

Imagine this, every day, when you’re out in public.

Crohn’s and Colitis are invisible and because of this, 1 in 2 people living with Crohn’s or Colitis have had a negative experience when trying to access an accessible toilet. Of these negative experiences 61% included verbal or physical abuse(3) - just for trying to use the accessible toilets they urgently need. Through campaigning, over 3,000 venues including the UK’s major supermarkets, travel hubs and major pubs and restaurants have installed our accessible toilet signs.

We know that alongside this signage needs to come education. This is why our latest phase of the campaign focuses on building understanding and awareness of invisible conditions in the workplace.

There are lots of ways to get involved with the campaign:

Ask your local council or venue to install our Not Every Disability is Visible signage.

Together, we can ensure people with Crohn’s or Colitis aren’t hidden at home – they’re out and about, living life to the fullest. Free from discrimination and abuse.

To find out about the history of the campaign, watch this video:

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Helpline Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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