Campaigning that works
Your emails to local councillors are already making a difference
Last month, we invited members to email their councillors, asking them to install Not Every Disability is Visible signs at toilets in public buildings.
The good news is that our call out is already making a difference. Nearly 600 people have sent emails to their councillors and we’ve already heard directly from councils who have told us they’d like to get involved.
One of those who contacted her local councillor was member Stephanie Clifton, who tells us: "It was important for me to get involved because there is still a stigma when it comes to hidden disabilities such as Crohn’s and Colitis. As a person with a hidden disability if you attempt to use a disabled toilet you are immediately judged and sometimes challenged.
“It can and is embarrassing to have to explain why you have to use the toilet, as well as taking up precious time that you don't have when trying to get to the toilet. To have visible signage clearly stating Not Every Disability is Visible would hopefully stop some of the stigma and questions."
Several councils around the country have recently resolved to get on board with the Not Every Disability is Visible campaign.
Councillor Suzy Cornwell, representing Holmewood and Heath, was heavily involved in ensuring that her council, North East Derbyshire, committed to displaying our signs and asked local retail and leisure outlets to do the same.
The council will also be consulting with our charity to ensure that staff have training on invisible disabilities and the toilet signage.
Thank you for taking part in this important campaign.
Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.