How we are governed

Since its creation as a patient's association in 1979, Crohn's & Colitis UK has grown in size and influence, providing support, campaigning and influencing, and driving research. And because people affected by Crohn's and Colitis are at the heart of everything we do, they are heart of our governance structures.

Here's our guide to our Board of Trustees and Committee structures. If you wish to contact any of the Trustees, email edith.agyemang@crohnsandcolitis.org.uk or call 01727 617348.

Board of Trustees

Our Board of Trustees is responsible at a governance level for the general control and management of the administration of the Charity. They provide us with leadership and provide strategic direction  to achieve our vision. Our Trustees have a wide range of valuable experiences and skills, and many of them have a personal connection to Crohn's and Colitis. They are all volunteers.

Our Articles of Association set our the framework for how the Board will operate and our governance generally.

Board committees & panels

The Board has a number of committees to help with its work. 

Below you can find the people involved:

Finance and Audit Committee

  • Mark Stavers
  • Paul Richmond - Chair
  • Iain Kemp - Trustee
  • Lucie Waters - Trustee
  • Colin Williams - Trustee

People and Organisational Development Committee

  • Mark Stavers
  • Anthony Lorman - Chair
  • Katy Olivera - Independent Adviser
  • Rebecca Mian
  • Amelia Ehren - Trustee
  • Darren Peiris - Trustee

Research Strategy and Funding Committee

  • Catherine Winsor – Director of Service & Evidence
  • Natalie Carter – Head of Evidence, Information & Research
  • Cristina Lujan Barroso – Research Manager
  • Sangeeta Sooriah – Interim Research Officer
  • Ashish Patel – Trustee
  • Christian Selinger – Clinical Adviser to the Board
  • Kelly Rust (KR) – Lived Experience
  • Emma McMillan (EM) – Lived Experience
  • Charles Maxwell-Armstrong (CMA)
  • Sebastian Shaji – Gastroenterology/BSG
  • Rachel Cooney – Clinical, Gastroenterology Consultant
  • David Wilson – Paediatric Gastroenterology Consultant/Professor
  • Tamas Korcsmaros – Lecturer in Intestinal Epithelial Biology/Co-lead of Imperial Organoid Facility
  • Caroline Brocklehurst – Lived Experience
  • Emma McMillan – Lived Experience

Terms of reference - Research Strategy and Funding Committee (PDF)

Research Awards Panel

  • Dr Mairi McLean (Co-Chair)
  • Dr Terry Dovey (Co-Chair)
  • Dr Simon Chan 
  • Dr Chris Lamb
  • Dr. Gwo-tzer Ho
  • Dr James Lee 
  • Pearl Avery
  • Dr Lynn Williams
  • Dr Rahul Kalla
  • Prof Richard Pollok
  • Prof Steven Brown
  • Dr Shellie Radford
  • Dr Elaine Kingwell
  • Dr Matthias Friedrich
  • Dr Nuru Noor
  • Dr Richard Hansen
  • Dr Calum Moulton
  • Marilyn Smellie (Lived Experience Representative)
  • Daniel Montgomery (Lived Experience Representative)
  • Emily Ridley (Lived Experience Representative)
  • Sameer Mannick (Lived Experience Representative)
  • Dr Shaun Chuah (Shadow Panel Member)

Research Awards Panel Terms of Reference (PDF)

Young Adults Advisory Panel

  • Paige Karadag (chair)
  • Samah Rafiq
  • Selan Lee
  • Lisa Donaldson
  • David Cohen
  • Serena Allman
  • Oliver Kaye
  • Rachel Youds
  • Joe Beese
  • Lucan Gleed
  • Munna Uddin
  • Mediha Azhar

Young Adults Advisory Panel Terms of Reference (PDF)

Meet our Young Adult Advisory Panel

Like what you see?

Like what you see? If you'd like to become part of our team, please see the latest jobs page for more details and how to apply.

Key policies

Read our key policies.

Annual General Meeting 2025

Read about our upcoming Annual General Meeting.

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Helpline Service

We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.

We’re here for everyone.

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How Can We Help?

  • We can help you understand Crohn’s and Colitis
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Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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