This year's Patient Involvement in Research Day took place on Saturday 11th November 2023 on Zoom.
Over 100 people joined us throughout the morning to listen to talks from researchers and to take part in live polls to help shape their current and future research.
It's so important that people living with IBD are involved in research at every step, as it ensures the outcomes of the research meet our community's needs, and participants have helped to shape several exciting projects.
If you couldn't join us on the day, or simply want to watch some of the talks again, you can watch the recording below.
Welcome - Ruth Wakeman, Director of Services, Advocacy & Evidence and Jackie Craissati, Chair of Crohn's & Colitis UK
Keynote talk - Professor Charlie Lees
A combined patient-researcher approach towards improving wellbeing in IBD - Dr Rebecca Hall & Molly Halligan
Patient Understanding of IBD and the ADVANTAGE project - Professor Amanda C de C Williams
Exploring the roles of Self-Compassion, Illness Perceptions and Coping Strategies in IBD - James Guerin
AWARE-IBD - Elena Sheldon & Samantha McCormick
ASSIST-IBD (A Self-led Self-management Intervention Supporting Teens with IBD) - Cassie Screti
IBD-BOOST programme grant results update - Professor Christine Norton
MaSH-IBD Study (Male sexual health in IBD) results update - Sara Ma
Understanding mechanisms of chronic pain in patients with IBD - Dr Ebad Ul Haq & Dr Ruqaya Idrees
Picturing IBD Fatigue - Suzy MacDonagh
Closing remarks - Ruth Wakeman, Director of Services, Advocacy & Evidence
If you have any questions about this event, please contact researchinvolvement@crohnsandcolitis.org.uk
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
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Last updated: 22/07/2026
Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email.
If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible.
Thanks for bearing with us.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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