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An Introduction to Patient and Public Involvement in Research.
Module 1
1.1 What is Patient & Public Involvement (PPI) in Research?
1.2 The Research Cycle
1.3 PPI Stories
1.4 Why is PPI important for research?
Additional resources
Below are some additional resources and reading related to Module 1 which we hope you will find useful.
- NIHR Involve information for members of the public who are thinking about becoming involved in research
- NIHR Starting Out Guide to advice on some key information and principles about shaping research
- NHS information on Clinical Trials
- NIHR Top Tips for new PPI members to funding committees
- Lizzie’s paper: Radford SJ, Smith L. Nurse and patient perspectives on participating in research: experience of an inflammatory bowel disease fatigue study. Gastrointestinal Nursing.
- Samantha's story
- Gut Reaction Glossary
- National Institute of Health Research (NIHR) Glossary
- NIHR BioResource/Cambridge Biomedical Research Centre Jargon Buster
- Connected Health Cities Health Data terminology glossary
Want to get involved in research?
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
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