SEARCH
An Introduction to Patient and Public Involvement in Research.
Module 1
1.1 What is Patient & Public Involvement (PPI) in Research?
1.2 The Research Cycle
1.3 PPI Stories
1.4 Why is PPI important for research?
Additional resources
Below are some additional resources and reading related to Module 1 which we hope you will find useful.
- NIHR Involve information for members of the public who are thinking about becoming involved in research
- NIHR Starting Out Guide to advice on some key information and principles about shaping research
- NHS information on Clinical Trials
- NIHR Top Tips for new PPI members to funding committees
- Lizzie’s paper: Radford SJ, Smith L. Nurse and patient perspectives on participating in research: experience of an inflammatory bowel disease fatigue study. Gastrointestinal Nursing.
- Samantha's story
- Gut Reaction Glossary
- National Institute of Health Research (NIHR) Glossary
- NIHR BioResource/Cambridge Biomedical Research Centre Jargon Buster
- Connected Health Cities Health Data terminology glossary
Want to get involved in research?
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
About Crohn's and Colitis
Page
saved
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
Helpline Service
Last updated: 22/07/2026
Our Helpline team can't take calls or ring you back for the rest of the summer. But you can still reach us by email.
If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible.
Thanks for bearing with us.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Stay in the loop
Together, we’re making the greatest difference. Sign up to hear about the amazing things we’re achieving together.
© Crohn's & Colitis UK