Caregivers' perspectives of fatigue experienced by their young relative living with IBD

Researchers at the University of Gloucester are looking for parents and guardians to explore their understanding about the fatigue experienced by the young person (aged 13-18) they care for who live with Inflammatory Bowel Disease.

This study which is part of the Picturing IBD Fatigue project, funded by Crohn’s & Colitis UK aims to broaden understanding of how fatigue is experienced by young people living with Inflammatory Bowel Disease (IBD). This study will explore the understandings of parents and carers and how they perceive the impact of IBD fatigue on their relative’s life.

Eligible participants for the study are parents and guardians who live in the UK with a young person who is:
- aged 13-18
- lives with IBD such as Crohn's disease or ulcerative colitis
- experiences fatigue as part of their IBD

Participants will be required to communicate in English and take part in one online focus group with up to five other family members of young people with IBD. 

If you are interested in taking part, or would like more information about the study, please complete the form below.

By entering your details, you are not committing to take part, but your contact details will be forwarded to the researcher who will get in touch with you directly with more information. You will have the opportunity to change your mind at any time.

This research study is funded but NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.

Opportunity posted 8 June 2026

Want to get involved in research?

The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.

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Last updated: 22/07/2026

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