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On 4 September we met with Permanent Secretary Peter May as part of the Long Term Conditions Alliance Northern Ireland (LTCANI), to raise concerns about the disproportionate impact the Department of Health’s proposed budget cuts will have on those with long-term conditions.
Campaigning for Better Diagnosis and Care in Northern Ireland
During the meeting we highlighted the expertise and innovation that our organisations bring to the health system and called for the Department of Health to:
- Recognise people living with long term conditions in policy and decision making.
- Recognise LTCANI as a partner to co-design solutions and system change as part of Department of Health’s transformation agenda.
- Commit to no more cuts to the essential services provided by voluntary and community sector organisations.
Whilst in Northern Ireland we met with The Alliance and Sinn Fein Health Spokespeople Paula Bradshaw and Linda Dillon to discuss the impact of delayed diagnosis and how they can make the case for change. We also discussed how the upcoming results of the IBD UK benchmarking surveys will be crucial in shaping IBD care in Northern Ireland next year.
If you live in Northern Ireland and would like to share your experience of IBD care, please contact policy@crohnsandcolitis.org.uk.
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Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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