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Crohn’s & Colitis UK have launched a new project to help speed up the diagnosis of Crohn's Disease and Ulcerative Colitis - the two main forms of Inflammatory Bowel Disease (IBD) - and raise awareness of IBD in primary care.
GP Project launched and we need your feedback
This year’s big IBD survey found that, for one in three respondents, getting a diagnosis of IBD took more than two years – for one in six, it took more than five years. Support from GPs was rated as important by nearly half of those surveyed, but you consistently tell us that GP awareness and understanding of IBD needs to be improved.
Over the next year, we will be developing tools and resources to ensure that GPs are better able to recognise the symptoms of IBD and to support their patients more effectively. We are delighted to be working with an expert project advisory group, which includes patient and professional representatives. The project will also be informed by patient and GP reference groups to provide a wider perspective.
Join our patient reference group
If you would like to join our patient reference group, which will give you the opportunity to directly input to this work and keep you updated on the project’s progress through email updates, then please email ppr@crohnsandcolitis.org.uk for further information.
- Find out more about how implementing quality standards can improve care for patients in Guidelines in Practice.
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Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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