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Nearly 1,200 people pledged their support to our campaign and also wrote to the Chief Executive of their local hospital.
Brilliant response to 'More IBD Nurses ' Better Care' Campaign
The results so far have shown what an influential community we are when we work together to change the services for people living with Crohn's Disease, Ulcerative Colitis and other forms of Inflammatory Bowel Disease.
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My CEO was contacted by one of my patients about the ‘More IBD Nurses – Better Care' campaign. I was moved to tears to know that all my hard work has not gone unnoticed. We have recently recruited a second IBD Nurse, which was very much needed as I was really struggling to cope with the workload on my own.
1,178 emails have been sent to the Chief Executives of 248 hospitals across the UK. The results and progress we've seen already has been excellent and this is all thanks to your support.
A few of the highlights include:
- One Trust is set to employ another IBD Nurse
- Three Chief Executives will review the business case for more IBD Nurses
- Several hospitals have identified areas they can improve and plans to address them
- Directors of Nursing from two Trusts contacted us, and are putting plans in place to discuss IBD nursing service development
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Our CEO has received several letters from patients and as a result we are drawing up a business case for a further IBD Nurse and more admin support. It’s working!
Join the campaign
There's still time to take action by emailing the Chief Executive of your hospital. Whether you have IBD, or know someone who does, you'll be supporting our call for better access to Specialist IBD Nurses, resulting in better care across the UK. Find out more about the campaign.
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Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
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We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
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- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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