The Work Foundation's new report 'Working Well -Promoting job and career opportunities for those with IBD' calls for an increase in the number of specialist nurses given the crucial role they play in supporting those with IBD to stay in work.
New report promotes job and career opportunities for those with Inflammatory Bowel Disease
Based on interviews with employers and employees, the report explores the impact that IBD has upon the world of work. It also recommends that government services such as Access to Work and the Fit for Work service must be reformed to support those with IBD as it now affects 1 person in every 210 in the UK and costs the economy around £300 million per annum.
Participants described how the unpredictable and disruptive nature of the condition also has psychosocial implications including anxiety and depression. In the workplace, a trusting and open relationship with a line manager was seen as vital in helping an employee to disclose their condition and agree adjustments to remain in work.
Recommendations for individuals, employers and other stakeholders to help improve the experience of those at work include:
- Individuals equipping themselves with information and having the confidence to disclose their condition
- Employers ensuring that line managers are good people managers and developing a supportive culture which offers flexibility and occupational health services
- Healthcare professionals ensuring work is a clinical outcome of care and expanding numbers of specialist nurses
- Patient charities raising awareness among employers
- Government ensuring that the Access To Work and Fit For Work should address the specific need of those with IBD
Helen Terry, Director of Policy, Public Affairs and Research said:
IBD Nurse Specialists play a pivotal role in the delivery of high-quality care and improving quality of life for their patients.
A recent Crohn's & Colitis UK survey found that those patients who had support from an IBD nurse were more than twice as likely to be 'very satisfied' with their care. It is regrettable, therefore, that the latest UK-wide audit of IBD services found that 14% still provide no IBD nursing for their patients and many others fall short of the recommended minimum level set out in the IBD Standards.
The expertise specialist nurses offer to patients is based on their unique understanding of the way in which IBD impacts on all aspects of life, including the importance of work and access to employment opportunities.
We cannot emphasise enough the value that patients place on this support.
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