New resources for Nurses and Healthcare Professionals

Published: 06 February 2018

With clear advice and information – compiled and edited with specialist nurses – you can explore becoming an IBD Nurse Specialistbuilding an IBD team and use a national IBD nurse map, and nurses' hub to get connected with other professionals.

At least 300,000 people in the UK live with Crohn’s Disease or Ulcerative Colitis - and the numbers affected are rising. Often diagnosed younger in age, these conditions are lifelong, relapsing and remitting and cost the NHS over £900 million per year. Lifetime medical costs associated with IBD care are comparable to diabetes or cancer.

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The availability of IBD nurse specialists across the UK is vital for people living with Crohn’s or Colitis to be able to access responsive health services and improved clinical outcome. They play a fundamental role in delivering high quality patient care and experience, lead patient centred service redesign, improve the quality of care and represent excellent value for money. I think this new resource will benefit so many healthcare professionals and help to improve the quality of care for all of those with IBD.

Although the number of IBD Nurse Specialists across the UK is increasing (only 2% of IBD Nursing teams meet the minimum number of nurses recommended in national quality standards and over 60% of IBD Nurse Specialists report a higher caseload than recommended levels), services are often suspended in the nurse’s absence, nurses are contributing significant unpaid overtime to meet demand, and patients are not receiving the high quality service that IBD Nurses can deliver. 

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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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