A draft quality standard for IBD has been published by NICE (the National Institute for Health and Care Excellence) for consultation.
NICE draft quality standard for IBD
Crohn’s & Colitis UK will be responding to this as a registered stakeholder and would like to hear from anyone affected by IBD who has a view they would like to feed into this.
NICE quality standards are made up of up to 8 statements which should define good quality care and ensure improvements in care.
Overall, we think the draft covers the right elements, but that it needs strengthening and extending to make it more meaningful, in particular around information and support, rapid access to specialist advice and ongoing monitoring. We would therefore be especially keen to receive any feedback or experiences that have been good or bad in these areas.
- Read the NICE draft quality standard
- Read our previous submissions as Crohn’s & Colitis UK and as part of the IBD Standards Group
We will be very grateful for any feedback received by Wednesday 28th May please so that we have time incorporate this into our final response. If you would like to discuss this, or have any specific queries, please contact philip.reynolds@crohnsandcolitis.org.uk or jackie.glatter@crohnsandcolitis.org.uk
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Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
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We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.