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BBC Newsbeat documentary, 'On tour with Crohn's Disease' has highlighted some of the trials and tribulations of living with Inflammatory Bowel Disease (IBD).
Our view: Beating the drum for high quality IBD care
Mark Holley, lead singer of Black Foxxes, shows how he manages his life in a rock band with his Crohn’s Disease, including treatment and the unpredictability of flares.
The BBC Newsbeat article and documentary highlights the need for greater guidance so that patients, in partnership with clinicians, understand treatment options at the each stage of their disease and how their condition can be managed alongside other medical and wellbeing needs.
While there are clear standards in how services should work and what good care looks like, there is still wide variation across services.
Crohn’s & Colitis UK are working together with health care professionals in England, Scotland, Wales and Northern Ireland to improve the quality of services and care and ensure the national standards that are in place are implemented.
Our guide, My Crohn’s and Colitis Care, outlines the top 10 essentials of a good IBD Service, based on the IBD Standards and can help you to get the best from your care.
As a key theme of our new five-year strategy, we will focus on driving high quality, sustainable care across the UK, so people with Crohn’s Disease and Ulcerative Colitis receive the right treatment in the right place at the right time.
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Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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