Patient Survey: Launch of UK-wide IBD patient survey gives YOU a powerful voice

Published: 08 July 2019

We want everyone to have high-quality and consistent IBD care, wherever they live in the UK. We know we aren’t there yet, but things are changing.

Last month, we led IBD UK to launch new IBD Standards. These standards say what Crohn’s and Colitis care should look like, at every point of the patient journey. From first symptoms, to flare, to surgery and everything in between.

We need to add your voice to the conversation.

Your anonymous feedback will tell healthcare professionals what parts of the IBD service are doing well and what parts need improving. Ultimately, your feedback will help shape how the NHS improves it services so it can better meet your needs.

Add your voice to the conversation and complete the IBD patient survey today.

For a paper copy, different languages or general queries please email info@ibduk.org or call 0300 222 5700. 

আপনার যদি কোনো কাগজের অনুলিপি ও ভিন্ন কোনো ভাষার প্রয়োজন হয় অথবা যদি কোনো প্রশ্ন থাকে, তাহলে অনুগ্রহ করে info@ibduk.orginfo@ibduk.org / 0300 222 5700 এ যোগাযোগ করুন

Jeśli potrzebują Państwo informacji w wersji drukowanej, w innym języku lub mają jakiekolwiek pytania, prosimy o kontakt z info@ibduk.org / 0300 222 5700

ਜੇ ਤੁਹਾਨੂੰ ਕਾਗਜ਼ੀ ਕਾਪੀ, ਕੋਈ ਵੱਖਰੀ ਭਾਸ਼ਾ ਦੀ ਲੋੜ ਹੈ ਜਾਂ ਕੋਈ ਤੁਹਾਡਾ ਕੋਈ ਸਵਾਲ ਹੈ, ਤਾਂ ਕਿਰਪਾ ਕਰਕੇ info@ibduk.org  / 0300 222 5700 'ਤੇ ਸੰਪਰਕ ਕਰੋ।

اگر  آپ ایک کاغذی کاپی یا کوئی مختلف زبان چاہتے ہیں یا کوئی سوالات پوچھنا چاہتے ہیں تو برائے مہربانی info@ibduk.org / 0300 222 5700 پر رابطہ کریں۔


The launch of the new standards represents the hard work and dedication of IBD UK, who are a group of 17 patient and professional organisations, led by Crohn’s & Colitis UK. If you would like to find out more about IBD UK and the IBD Standards, please visit ibduk.org.

Thank you; together we can make a difference and improve the quality of IBD care for all.

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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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