Representatives from Crohn's & Colitis UK and the Prescription Charges Coalition, along with Stephen McPartland MP, met with Lord Prior, a Minister at the Department of Health to discuss prescription charges for people with long term conditions on Wednesday 25 May.
Prescription Charges: Meeting with Minister at the Department of Health
This meeting was as a result of a letter sent to the Secretary of State for Health by the Chairs of several All Party Parliamentary Groups (APPG) including Respiratory Health, Parkinson’s, Motor Neurone Disease, HIV and AIDS, Sickle Cell and Thalassaemia, and Heart Disease. APPGs are groups of MPs from all the political parties who agree to work together on certain topics they think are important. The letter asked the Secretary of State for Health to review the medical exemption list which sets out the conditions for which people do not have to pay for prescription charges.
The Prescription Charges Coalition is an alliance of 40 organisations concerned with the detrimental impact of prescription charges on people of working age with long-term conditions. Crohn’s and Colitis UK are Joint Chairs of the Coalition along with Parkinson’s UK.
We believe that the list of medical exceptions, unchanged (apart from the addition of cancer in 2009) since its introduction in 1968, is severely out of date and illogical. Whilst it was first created in 1968 with input from the medical profession, a lot can change in medical advancement in 50 years! And we believe that people with long term conditions shouldn’t be in a position where they have to pay high costs for the life-saving medication they rely on to stay healthy and active.
Alongside Stephen McPartland MP, who chairs the Respiratory Health APPG, we conveyed our points about the unfairness of the current exemption criteria to the Minister. The burden of prescription charges falls heavily on those of working age, with long term conditions, and we know that many people with long term conditions struggle to pay for their prescriptions, often resulting in serious consequences because they haven’t taken their medicine.
Lord Prior took our points on board, and seemed sympathetic to the issues faced by people with long term conditions, but made no specific commitments. It’s clear that the Coalition will have to continue to fight on this issue. That’s why it’s vital that as many people as possible continue to raise this issue with their MP so that the Government are given a clear message that they must act.
Find out more
Read our latest news
Catch up on the latest news from Crohn’s & Colitis UK
Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.