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The Care Quality Commission (CQC) wants to hear people's experiences of living with ‘invisible’ conditions, their experiences of care, and ideas of how care could improve.
Support the CQC's Invisible Conditions campaign
Nearly one in three people in England have a long term condition, and many of these conditions are ‘invisible’ or not easily noticeable to someone else, including Crohn's Disease and Ulcerative Colitis - the two main forms of Inflammatory Bowel Disease (IBD).
In their State of Care 2015/16 report, the CQC found that people with long term conditions were less likely to report having a good experience of using services. They want to educate patients about the standards of care they have a right to expect and to let them know they can feedback to them about their care.
From 14 - 18 November, the CQC are running a campaign around invisible illnesses, and are focussing on Inflammatory Bowel Disease on Thursday 17 November.
If you have been diagnosed with Crohn's Disease or Ulcerative Colitis, they want you to tell them about the care you are receiving, good or bad. Your information will help them decide when, where and what to inspect. By telling them about your experiences, you could stop poor care happening to someone else.
Will you share your experience of care? You can join in the conversation on social media using #InvisibleConditions, follow the CQC on Twitter: @CareQualityComm and tell them about your experiences on their website.
- Find out more about the campaign.
- Download 'My Crohn's and Colitis Care' - our guide to help you get the best out of your healthcare service by working in partnership with those supporting you.
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Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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