The International Consortium for Health Outcomes Measurement (ICHOM) is interested in what matters most to people before, during and after treatment for Inflammatory Bowel Disease (IBD).
Survey: Developing The IBD Standard Set
Participants will complete an online survey, which will take approximately 5-10 minutes. Your responses will be collected anonymously and will be used to develop a set of health outcomes for people with IBD - The IBD Standard Set.
The Standard Set has been proposed by the ICHOM IBD Working Group, which is comprised of health professionals, clinicians and people affected by IBD.
The survey aims to assess your perspective on the outcomes included in The IBD Standard Set so far. The results will then be used by healthcare providers around the world to provide clinicians and patients with information on the actual outcomes to improve healthcare.
If you would be interested in taking part, please visit the website to complete the survey before Saturday 20 August. If you have any questions, please contact Dr Charlotte Roberts by email c.roberts@ichom.org.
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Helpline Service
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
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Providing information about Crohn’s and Colitis.
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Listening and talking through your situation.
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Helping you to find support from others in the Crohn’s and Colitis community.
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Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.