SEARCH
The International Consortium for Health Outcomes Measurement (ICHOM) is interested in what matters most to people before, during and after treatment for Inflammatory Bowel Disease (IBD).
Survey: Developing The IBD Standard Set
Participants will complete an online survey, which will take approximately 5-10 minutes. Your responses will be collected anonymously and will be used to develop a set of health outcomes for people with IBD - The IBD Standard Set.
The Standard Set has been proposed by the ICHOM IBD Working Group, which is comprised of health professionals, clinicians and people affected by IBD.
The survey aims to assess your perspective on the outcomes included in The IBD Standard Set so far. The results will then be used by healthcare providers around the world to provide clinicians and patients with information on the actual outcomes to improve healthcare.
If you would be interested in taking part, please visit the website to complete the survey before Saturday 20 August. If you have any questions, please contact Dr Charlotte Roberts by email c.roberts@ichom.org.
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Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed from Wednesday 10 June and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
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Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
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