SEARCH
The International Consortium for Health Outcomes Measurement (ICHOM) is interested in what matters most to people before, during and after treatment for Inflammatory Bowel Disease (IBD).
Survey: Developing The IBD Standard Set
Participants will complete an online survey, which will take approximately 5-10 minutes. Your responses will be collected anonymously and will be used to develop a set of health outcomes for people with IBD - The IBD Standard Set.
The Standard Set has been proposed by the ICHOM IBD Working Group, which is comprised of health professionals, clinicians and people affected by IBD.
The survey aims to assess your perspective on the outcomes included in The IBD Standard Set so far. The results will then be used by healthcare providers around the world to provide clinicians and patients with information on the actual outcomes to improve healthcare.
If you would be interested in taking part, please visit the website to complete the survey before Saturday 20 August. If you have any questions, please contact Dr Charlotte Roberts by email c.roberts@ichom.org.
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Helpline Service
Last updated: 22/07/2026
Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email.
If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible.
Thanks for bearing with us.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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