Help us to understand the impact of COVID-19 on your IBD care

Published: 21 January 2021

We ran a survey last year to understand how COVID-19 had impacted upon your care.

6 months on and with new lockdowns across the UK, we want to understand how the quality of your IBD care, ability to access specialist advice and have surgery or tests has been affected.

We want to hear from people from across the UK and from a range of perspectives. Based on your experiences in the last two months please tell us about any of the following (you don't have to respond to each question below):

  • How easy or hard it is to access IBD services and advice when you're flaring?
  • Your experience of having or waiting for surgery or investigations
  • Did you receive clear shielding information this time around?
  • Have your experiences been better or worse than last year?
  • Did you delay going to A&E or into hospital for tests or surgery? Why?
  • How home deliveries (biologics or stoma equipment) or accessing medicines have been affected?
  • How have you found virtual or video appointments or home monitoring, like faecal calprotectin testing at home? Or is this not available?
  • Are you newly diagnosed? What was this like?

If you feel that any of the above questions relate to your personal circumstances and you are happy to share your experiences, please email policy@crohnsandcolitis.org.uk. If you have ideas about how services can be improved or be more accessible, please do share them. We would be grateful if you can include whether you live in England, Scotland, Northern Ireland or Wales and the town or city in which you live (not your address) in your response.

We know from experience that different ideas, perspectives, backgrounds, and experiences contribute to a better understanding of the Crohn's and Colitis community, and in turn strengthen our work and our ability to speak on your behalf. We want to hear from the widest range of people; people from every age, disability, sex, gender identity and gender expression, race or ethnicity, religion or belief, sexual orientation or other personal circumstances.

We plan to use this information to inform discussions with governments and parliamentarians about how to improve access to IBD care for you and for others. If you would not like your information shared anonymously as a case study or quoted in our work, please do let us know clearly in your email.

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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