Life in Lockdown survey

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Lead researcher: Crohn’s & Colitis UK

 

Our Life in Lockdown survey ran during June and July - an incredible 7,666 people with Crohn’s and Colitis took part to help us understand the impact of the coronavirus pandemic. Here are some of the key results:

  • 96% of you think Crohn’s & Colitis UK have understood and accommodated your needs during the pandemic.
  • 1 in 5 people with Crohn’s and Colitis didn’t receive the correct information about whether or not they should be shielding.
  • Almost 1 in 5 people had a flare because they couldn’t access the health services they needed.
  • Almost half of people with Crohn’s and Colitis said: My mental health has been negatively affected by the pandemic.
  • Three quarters of people with Crohn’s and Colitis disagreed or strongly disagreed that the general public have understood or accommodated their needs.
  • Over half of people with Crohn’s and Colitis have had more time to rest during the pandemic.
  • 42% think the pandemic could change the way we work for the better.

For more information on these results, visit our news item


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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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