Speaker bios

Rosa Legeno-Bell is the Engagement Manager at the Patient Information Forum (PIF), the UK organisation for trusted health information. She works with charities, the NHS and health organisations to improve public health information and tackle health misinformation. Rosa leads research and conversations with PIF members about misinformation and disinformation, including how misleading health stories spread online, and how trusted organisations can respond clearly and responsibly. She also writes PIF’s “Trusted Voices” feature, which brings together expert views on current health stories, public concerns and the circulation of mis- and disinformation. Before joining PIF, Rosa worked in schools for 15 years as a history teacher, senior leader and education consultant. Her background includes teaching students how to question sources, spot bias and think critically about information.

Holly '@stomababe' Fleet is a journalist, content creator and disability advocate who shares life with Inflammatory Bowel Disease and a stoma across social media. Through her platforms, she has built a community of more than 270,000 followers, using honest storytelling to raise awareness, challenge stigma and highlight the realities of living with Crohn’s and Colitis. Holly is passionate about creating conversations around chronic illness online while encouraging safer, more informed use of social media.

Luke is a podcast producer, events producer, creative consultant, photographer, and massive Star Wars fan. He has been working with Crohn's & Colitis UK since 2023, and is the co-host of Crohn's & Colitis UK – The Podcast. Luke was diagnosed with Crohn's Disease following an emergency operation in autumn 2011 after appendicitis was initially misdiagnosed, waking up with a stoma bag. In 2012, his stoma was reversed, but he has since undergone further procedures and operations, including bowel resection surgery last year.

Catherine Winsor is Director of Services, Research & Evidence at Crohn's & Colitis UK. She has worked in the healthcare charity sector for over 20 years, including senior roles at Prostate Cancer UK and Bowel Cancer UK, leading teams focused on improving healthcare pathways and the provision of patient support services. Catherine is passionate about health inequality and improving access to support for everyone. 

FAQs

Who is this webinar for?

This webinar is for anyone affected by Crohn's or Colitis. You may live with the condition yourself, or want to learn more about it to help you support a loved one.

How do I join? 

1. Register for your free place by filling in this quick form
2. We will send you a confirmation email with your unique link to join
3. We will send you a reminder email an hour before the webinar starts

Help! I haven't received a confirmation email.

You should receive a confirmation email immediately. If you haven't, and it is not in your Spam or Junk folder, it is possible your email address was misspelled. Please register again and double-check the spelling of your email address - or send us an email so we can make sure you have everything you need to join the event. 

Do I need to download anything, or create an account?

The webinar will be held using Zoom Webinar. 

You don't need a Zoom account, or to download any software, but for the best experience we recommend joining using the free Zoom app. Without the app, you may not be able to use features like the Chat and Polls.

You can join using a desktop, laptop, smartphone or tablet. 

Will I be on camera?

No - this event is a webinar, not a meeting, so your camera and microphone will be off and you can relax knowing that nobody is able to see or hear you. 

Will the webinar be streamed live, or recorded?

The webinar won't be streamed live on social media - to watch it live, you will need to register. The webinar will be recorded, and we will share the recording with everyone who registered.