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Ziyad - Information Feedback Volunteer
"Volunteering was a natural step for me in my journey with Crohn's disease."
Ziyad has been living with Crohn’s since 2007. For the past six years he has volunteered with Crohn’s & Colitis UK, first as an Awareness Volunteer and now as an Information Feedback Volunteer.
What I enjoy the most about volunteering is the chance to make a tangible difference in people's lives. I've always been intrigued by the patient experience, especially meeting those with similar and vastly different experiences to my own.
Whether it's through sharing my own story to let others know they're not alone or by helping to refine information so it's easily digestible (pun not intended), every contribution feels like a step towards a more supportive and understanding community.
Among the various projects I've participated in, In My Shoes and the Talking Toolkit hold a special place for me. These initiatives offered a unique glimpse into the daily reality of living with IBD, which can be really hard to explain to those who do not have it. These campaigns provided invaluable resources for individuals like me to navigate conversations about our conditions with confidence - a skill I once struggled with immensely.
Want to volunteer with us?
Our Information Feedback Volunteers help produce our award-winning information. They provide feedback on drafts of our upcoming webpages, videos and infographics. Information Feedback Volunteers are a key part of our information production process and help make sure our information is relevant and easy to understand.
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Helpline Service
Last updated: 22/07/2026
Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email.
If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible.
Thanks for bearing with us.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.