SEARCH
The IBD Registry has now officially launched as an independent not-for-profit company.
Lift-off for IBD Registry
Crohn’s & Colitis UK have joined forces with the British Society of Gastroenterology (BSG), and the Royal College of Physicians (RCP) to create IBD Registry.
The Registry’s purpose is to deliver data that will help IBD teams to provide better care to their patients.
“”
The BSG remains committed to supporting high quality care and outcomes for people with IBD, and the IBD Registry is vital for supporting service improvement and answering key research questions. This new partnership offers a solid multi-professional and patient foundation for the project to thrive as an organisation in its own right and continue to meet patient needs.
This new legal structure will be the groundwork for expanding and improving the IBD Registry, and will give more opportunities for collaboration. The new company is already looking to appoint the first CEO of IBD Registry Ltd.
The Board of the Registry has ambitious plans for developing a long-term strategy that places the Registry at the heart of IBD research and health service development.
“”
We are proud that clinical teams across the UK have invested precious time in supporting the UK IBD Registry. We know that this initiative has the potential to change practice and improve the care we give to our patients. This new phase will open up opportunities for patient participation and linkage with projects in other fields. Continued progress is dependent on continued participation from clinical teams. Please carry on the good work with data entry: the next 12 months will see evidence that time spent on the Registry is rewarded by data reflecting quality of care delivered.
Read our latest news
Catch up on the latest news from Crohn’s & Colitis UK
Page
saved
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
Helpline Service
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
-
Providing information about Crohn’s and Colitis.
-
Listening and talking through your situation.
-
Helping you to find support from others in the Crohn’s and Colitis community.
-
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Stay in the loop
Together, we’re making the greatest difference. Sign up to hear about the amazing things we’re achieving together.
© Crohn's & Colitis UK