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Our consultation responses

We respond to proposals and consultations from policymakers and governments on a wide range of issues that affect people living with Crohn’s and Colitis across the UK. From health to employment, and from to benefits to access to toilets. We also collaborate with other organisations so that we can have a greater impact.

Our submissions have been successful in securing changes in policy, improving access to drug treatments and pushing IBD higher up the political agenda.

We use your experiences and the most up-to-date evidence to argue the case for changes to services, policy, and law to help people with Crohn’s and Colitis to live their life to the fullest.  We encourage and support you to share your experiences so that policymakers consider the broadest range of perspectives. 

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Listening to, understanding and acting on the experiences of people with Crohn’s and Colitis is essential to good policy-making. Your accounts of how these conditions impact your life inspire action. This is why we want to work with you to better understand what needs to change, and make those changes happen

Burcu Borysik

Head of Policy and Campaigns

You can read our responses to past consultations across a range of topics below:

Health

Long Term Conditions Framework, Scottish Government (July 2025)

Future of general practice, Senedd Health and Social Care Committee (March 2025)

NHS 10 Year Plan, Department of Heath and Social Care, UK Government (December 2024)

Homecare Medicines Services, House of Lords Public Services Committee (June 2023)

Supporting people with chronic conditions, Senedd Health and Social Care Committee (May 2023)

Endoscopy Services: follow up inquiry, Senedd Health and Social Care Committee (December 2022)

Maximising the opportunity presented by biosimilar medicines - a national strategy for Wales (September 2022)

Mental Health and Wellbeing Strategy, Scottish Government (September 2022)

Welsh Government's plan for Transforming and modernising planned care and reducing waiting lists, Senedd Health and Social Care Committee (June 2022)

Impact of the waiting times backlog, Senedd Health and Social Care Committee (January 2022)

NHS Backlogs and Waiting Times: Public Accounts Committee Inquiry (September 2021)

Clearing the backlog caused by the pandemic, Health and Social Care Select Committee inquiry (September 2021)

Women's Health Strategy for England, Department of Health and Social Care, UK Government (June 2021)

Transport

Accessible transport: legal obligations, Transport Select Committee, House of Commons (March 2023)

Accessibility Duty - Consultation on legislation to implement rail transformation, Department for Transport, UK Government (July 2022)

Taxi and private vehicle hire, Department for Transport, UK Government(June 2022)

Mobility as a Service Code of Practice, Department for Transport, UK Government (February 2022)

Benefits

Work Capabilities Assessment: activities and descriptors, Department for Work and Pensions, UK Government (October 2023)

Adult Disability Payment Mobility Consultation, Scottish Government (April 2023)

Shaping future support: the health and disability green paper, Department for Work and Pensions, UK Government(October 2021)

Employment

Disability employment, Work and Pensions Committee, House of Commons (March 2024)

Making flexible working the default, Department for Business, Energy and Industrial Strategy, UK Government (November 2021)

Toilets

Changing Places Toilet Provision, Welsh Government (May 2021)

Toilet provision for men and women, Ministry of Housing, Communities, and Local Government, UK Government (January 2021)

 

Become a Campaigner

None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter. 

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Helpline service

Helpline Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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