We've compiled links to some helpful guidance on budgeting for involvement. You should consider carefully how you will reduce the barriers to getting people involved in research. One of the ways of doing this is to offer payment and reimbursement for costs incurred, including travel, accommodation, respite or childcare.
Budgeting for Patient and Public Involvement
NIHR - Payment guidance for researchers and professionals
The NIHR have developed guidance on payment for involvement for researchers, professionals and those involved in research.
Cancer Research UK - Budgeting for your patient involvement
Detailed guidance for researchers from Cancer Research UK about how to budget for involvement in research.
Helpline Service
Temporary closure - 10/06/2026
Our Helpline will be closed for the remainder of this week and will reopen at 10am on Monday 15 June.
We may be closed but we have lots of information here on our website.
If you need urgent medical advice you can call NHS 111 or in Northern Ireland phone your local Phone First. In an emergency call 999 or go to your nearest A&E.
If you need emotional support the Samaritans are available 24 hours a day, 7 days a week on 116 123.
We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But we’re with you. We can give you the right information and support at the right time.
We’re here for everyone.
How Can We Help?
- We can help you understand Crohn’s and Colitis
- Listen and talk about living with IBD
- Help you connect with others in the Crohn’s and Colitis community
- Give you contact details of specialist organisations
- We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 10am to 3pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.