Diversity in PPI

It is important to ensure that you are including a wide range of people in your research.  Consider how you can involve people from different cultures, communities and ethnic backgrounds.

NIHR INCLUDE Guidance

NIHR-INCLUDE was commissioned to address the lack of representation in health and care research with the aim of providing better health and care through more inclusive research. The INCLUDE Guidelines provide a strategic overview of potential points for intervention to improve inclusion of under-served groups across the life course of research; key objectives to improve inclusivity and guiding principles for stakeholders to apply the guidance.

Equality, Diversity and Inclusion in Science and Health

EDIS is a coalition of organisations working to improve equality, diversity and inclusion within the science and health research sector.  Here you’ll find practical tools or guides that will help with planning, implementing or evaluating projects and programmes to improve EDI in science and health research.

Connecting with black communities

Crohn’s & Colitis UK commissioned ClearView Research to carry out a research project to gain insights into why people from black communities do not engage in Crohn’s and Colitis research. The project also aimed to identify clear recommendations that would promote increased engagement with these communities.

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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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