PPI Guidance

The UK Standards for Public Involvement are designed to improve the quality and consistency of public involvement in research.  They describe what good public involvement looks like and encourage approaches and behaviours that are the hallmark of good public involvement. 

This guidance has been written to assist Chairs of research groups that include PPI members. It focuses on the aspects of chairing that PPI members have identified as being important. It does not aim to provide general advice on good chairing. However many of these suggestions are likely to benefit all group members – whatever their background – and will help groups to work together more effectively. (PDF Document).

This toolkit provides guidance, tips and templates to help you plan, deliver and evaluate your patient involvement. 

This website offers practical guidance about how to involve patients and the public in laboratory based research.  It was developed by UCLH Biomedical Research Centre, Alzheimer’s Society and Parkinson’s UK, in partnership with patients, the public and researchers.

Involving People is a resource for systematic review editors and authors to support you in getting people involved in the production of your reviews.  The resource will provide best practice and practical suggestions for finding and involving people throughout the review process; including useful resources, guidance documents, interviews about first hand experiences, and links to case studies and examples of good practice.

You will need a Cochrane Account to access this module. If you don’t have a Cochrane Account you will be able to register for free.

Patient and Public Involvement (PPI): Feedback from Researchers to PPI Contributors. (PDF Document).