Webinar — Scrolling for answers? Spotting health misinformation

Published: 18 June 2026

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If you're living with Crohn's or Colitis, you've probably been faced with a huge amount of information - especially online - about diets, treatments, so-called "quick fixes" and "miracle cures". It can feel overwhelming trying to work out what’s accurate, what’s safe, and what might actually help. Unfortunately, not all of this information is reliable, and following the wrong advice can be expensive, ineffective and even dangerous.

In this free webinar, Rosa Legeno-Bell from the Patient Information Forum (PIF) leads a practical session designed to support you in cutting through the noise, helping you spot misinformation, understand what evidence-based information looks like, and feel more confident making decisions about your health. 

We also hear from content creator Holly '@stomababe' Fleet about the ups and downs of sharing her life with Ulcerative Colitis online, and from Luke, who discusses his experiences of navigating health content and living with Crohn's Disease.

Scroll down to watch the recording, view the slides, and find out more about our speakers.

Watch the recording

Information you can trust

This webinar was produced in partnership with the Patient Information Forum (PIF). PIF is an independent body that exists to promote high-quality health information. 

You may have seen this tick logo at the bottom of our information. The PIF TICK helps you to identify trusted, evidence-based and accessible health information. When you see the PIF TICK logo, you know that the information has been produced by a certified Trusted Information Creator - and at Crohn's & Colitis UK, we're proud to be PIF TICK certified.

Our speakers

Speaker bios

Rosa Legeno-Bell is the Engagement Manager at the Patient Information Forum (PIF), the UK organisation for trusted health information. She works with charities, the NHS and health organisations to improve public health information and tackle health misinformation. Rosa leads research and conversations with PIF members about misinformation and disinformation, including how misleading health stories spread online, and how trusted organisations can respond clearly and responsibly. She also writes PIF’s “Trusted Voices” feature, which brings together expert views on current health stories, public concerns and the circulation of mis- and disinformation. Before joining PIF, Rosa worked in schools for 15 years as a history teacher, senior leader and education consultant. Her background includes teaching students how to question sources, spot bias and think critically about information.

Holly '@stomababe' Fleet is a journalist, content creator and disability advocate who shares life with Inflammatory Bowel Disease and a stoma across social media. Through her platforms, she has built a community of more than 270,000 followers, using honest storytelling to raise awareness, challenge stigma and highlight the realities of living with Crohn’s and Colitis. Holly is passionate about creating conversations around chronic illness online while encouraging safer, more informed use of social media.

Luke Bligh is a podcast producer, events producer, creative consultant, photographer, and massive Star Wars fan. He has been working with Crohn's & Colitis UK since 2023, and is the co-host of Crohn's & Colitis UK – The Podcast. Luke was diagnosed with Crohn's Disease following an emergency operation in autumn 2011 after appendicitis was initially misdiagnosed, waking up with a stoma bag. In 2012, his stoma was reversed, but he has since undergone further procedures and operations, including bowel resection surgery last year.

Catherine Winsor is Director of Services, Research & Evidence at Crohn's & Colitis UK. She has worked in the healthcare charity sector for over 20 years, including senior roles at Prostate Cancer UK and Bowel Cancer UK, leading teams focused on improving healthcare pathways and the provision of patient support services. Catherine is passionate about health inequality and improving access to support for everyone.

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As someone who’s lived with Crohn’s Disease for over a decade, I know how easy it is to feel lost in a sea of conflicting health advice online. I’m looking forward to being part of a conversation that helps people feel informed, supported, and less alone.

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Helpline Service

Last updated: 22/07/2026

Our Helpline team can't take calls, chats or ring you back for the rest of the summer. But you can still reach us by email. 

If you need to contact the team, please email helpline@crohnsandcolitis.org.uk and we'll answer you as soon as possible. 

Thanks for bearing with us.

How Can We Help?

  • We can help you understand Crohn’s and Colitis
  • Listen and talk about living with IBD
  • Help you connect with others in the Crohn’s and Colitis community
  • Give you contact details of specialist organisations
  • We can support you to live well with Crohn’s or Colitis and provide up-to-date, evidence-based information

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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