Sometimes, it can be difficult knowing how you can help a loved one living with Crohn's or Colitis. That's why we've created information and resources to help you to support them, and to ensure you look after yourself too.
This page includes everything from key facts about supporting people living with either condition, as well as tips to help, ways to look after yourself, and sources of support if you need them.
Our Living with Crohn's or Colitis hub offers information on the conditions and advice for the newly diagnosed, as well as information on topics such as mental health, travelling, smoking, pregnancy, food and more. Reading this information can help you understand what your loved one might be experiencing so you can support them in little ways that may have big impacts.
You can join on behalf of someone under 16, gift a membership, or share a family membership with 2 other people at the same address. As part of your membership, you'll receive a Can't Wait Card to quickly communicate the need for a toilet when you're out, a RADAR key to unlock disabled toilets, Connect magazine, virtual social events, exclusive invites to other events and a chance to vote at our Annual General Meetings, and lots more.
I joined after our son was diagnosed and was so pleased to receive such useful information given in a non-alarmist way. My husband and I attended a number of your annual meetings and we were impressed with your organisation, the content and the wide variety of speakers.
A parent joining on behalf of her son
Working to help unpaid carers, these charities offer support, advice and resources to allow those looking after people who need additional support to live fulfilled lives.
CICRA works to support children and families living with IBD specifically. They aim to ensure children and families get the information and support they need.
If you're a parent or guardian, it's only natural to wonder how you can support your child with the condition, and what it could mean for your family. Our Supporting a child with Crohn's or Colitis page can help.
Young people with Crohn's or Colitis don't want their condition to get in the way, but sometimes it can be hard to maintain and make new friendships. Our guide was put together with researchers from Edge Hill University, and can help you understand how the conditions might affect their friendships, how they might feel, and how you can support their friendships.
Going from children's care to the adult IBD team might make you or the young person you're supporting feel nervous, and that's totally normal. Our information will help you know what you can expect.
Hear some top tips from JJ, a young person living with Crohn's
Diagnosed at age 7, JJ shares his top tips for other kids living with Crohn's or Colitis. You could share this with the young person you're supporting.
It can be tough helping someone with a chronic illness. We understand. Our Helpline can be accessed by phone, email or LiveChat, and our friendly team will be able to offer support and signpost to other sources that may be of use for you.
Want to meet people living with Crohn's or Colitis, or supporting those who do? We'd love to see you at one of our virtual social events!
Join our growing network of friendly, passionate volunteers!
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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